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Attendant Service Providers
Speak Up brought together managers within the attendant service
sector and adults who use AAC in order to identify service needs and recommendations
related to healthy sexuality and safeguarding for people who use AAC.
Focus Group Members
Service Needs
Guidelines
Resources for Attendant Service Providers:
Focus Group Members [Top]
Pam Gaudet |
Ontario March of Dimes, Hamilton |
Jason Masters |
AAC User / Speak Up Consultant |
Kim Knox |
PACE |
Tracy Howell |
PACE |
Diane Duncan |
Tobias House |
Fran Boyce |
Three Trilliums |
Mary Tomasini |
Tobias House |
Shannon Rogers |
Participation House, Waterloo |
Toby Harris |
Participation House, Waterloo |
Chris Hunt |
North Yorkers, Toronto |
Cathy Samuelson |
North Yorkers, Toronto |
Valerie Scarfone |
ICAN, Sudbury |
Aaron Shelbourne |
AAC User / Consultant, Speak Up Project |
Fran Odette |
Sexual Health Educator, Speak Up Project |
Jake Pyne |
Sexual Health Educator, Speak Up Project |
Barbara Collier |
AAC Clinician / Coordinator, Speak Up Project |
Service Needs [Top]
The following service needs and challenges were identified:
- There is a lack of consistent policies and practices, and standards
of practices across and within service agencies relating to areas of
sexual health assistance and safeguarding. This inconsistency creates
increased risk/vulnerability for AAC users related to exploitation and
abuse.
- There is no standard in place for training attendant care providers
around communicating with AAC users about their services in general
and specifically related to sexual health and assistance – including
information about Sexually Transmitted Infections and safer sex devices.
- Attendant care providers are typically not trained in areas related
to sexual assistance.
- AAC users report that they are frequently not informed or provided
with accessible information about the agency’s policies and procedures
related to sexual assistance, process for complaints and safeguarding
procedures.
- AAC users report that they often do not know their rights, specifically
relating to issues of dignity, and privacy within the context of attendant
services.
- AAC users report that they do not have access to information about
community services for sexual health, and disability.
- AAC users report a lack of privacy regarding personal activities requiring
assistance by attendants.
Guidelines for Attendant Service Providers and Agencies [Top]
The following statements are based on discussions with attendant
service providers and persons who use AAC on the issue of sexuality and
safeguarding within the context of attendant services. They are to be
considered as ‘guidelines’ for the purpose of discussion.
- Attendant agencies may require policy development and practice
guidelines around sexuality and sexual assistance for attendant service
providers. This needs to include provisions for rights and responsibilities
of consumers as well as attendants.
- Ongoing education on sexuality, sexual assistance and safeguarding
as it relates to attendant services is required at management, front
line and consumer levels.
- A service model as it relates to the provision of attendant services,
which includes sexual assistance, may be required as a pilot project
for Ontario. National and international models that address the sexual
assistance and safeguarding needs of people with disabilities who may
or may not use AAC could be explored as a part of this process.
- Attendant service providers could be trained in communicating with
people who use AAC and be provided with sufficient time and resources
to support the needs of people who use AAC.
- Information about sexual assistance and safeguarding needs of people
who use AAC and the role attendant service providers play must be highlighted
at individual, agency, inter agency and provincial levels.
- Clinicians who provide services to adults who use AAC could play
a role in providing vocabulary and communication strategies to communicate
about healthy sexuality and safeguarding.
- Attendant service agencies could play a role in informing AAC users
about accessible local sexual health, counseling services.
- Agencies could consider providing information about their policies
and procedures in accessible alternate formats for AAC users with reduced
literacy skills or who may be unable to turn pages in a book. The format
presented could be cited on their consent form to ensure that they
have received the information. Agencies may want to explore ways to
ensure that AAC users who have reduced comprehension skills have received
appropriate support to assist them in understanding the content to which
they are consenting. Guidelines for providing alternate access formats
for policies and procedures are required in order to accommodate a range
of needs for people who use AAC.
- AAC users may want to document a service plan relating to how they
want their services provided to them. Guidelines for writing service
plans could be developed and shared with AAC users and/or their service
providers. AAC users may want to have a personalized service plan binder,
which outlines step by step routines to instruct those providing personal
care to ensure competent and effective care delivery.
- AAC users may require access to emergency call bells/alert systems
within their homes. AAC users and their service providers may need to
explore services and for funding for environmental controls, alert systems
and telephone access.
- Agencies could support and enhance responses to the safeguarding
needs of new residents or clients for respite stays, by reviewing safety
procedures such as locking doors, keeping personal property safe etc.
This might comprise of a ‘safety plan’ to be reviewed with
the person at time of orientation to services etc.
- AAC users may want to provide agencies with a list of three or four
names to in the event of an emergency situation. The procedure must
include asking the AAC user to select the most appropriate contact in
a given situation.
- Agencies could have specific client centered policies and procedures,
which outlines measures for responding to abuse disclosures, including
sexual abuse. These policies would be separate from a general complaint
process. Abuse disclosures could ensure that appropriate and safe supports
are in place, criminal and civil options, when to call the police, when
to call an AAC interpreter etc.
- Agencies could engage people who use AAC and who are the recipients
of their service to participate in the evaluation of their services.
Speak Up Resources to Support Attendant
Service Providers: [Top]
[Top]
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